For people who've been told there's nothing more that can be done and know there's more to their health story.
If you're living with hypermobile Ehlers-Danlos Syndrome (hEDS), Hypermobility Spectrum Disorder (HSD), or a related condition like POTS or MCAS, and you're tired of navigating a system that doesn't have the framework to understand you, this is for you.
I built this practice because I needed it myself.
I received my own hEDS diagnosis after years of appointments, dismissals, and a healthcare system with no clear pathway to offer me.
I know what it costs to keep explaining yourself to people who don't quite understand. And I know that when someone finally takes the time to listen, believe you and connect the dots, something shifts, even before we've explored any practical changes
HEALTH COACHING
Practical, whole-person support for living well with a complex condition.
Health coaching isn't therapy, and it isn't a replacement for medical care. It sits between clinical advice and real-life implementation, providing the practical, personalised support that helps you understand your body, implement what your medical team recommends, and build a life that works around your condition rather than against it.
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The initial consultation is 90 minutes. You'll have the space to share your full history without being hurried, without having to justify yourself, without someone glancing at the clock. Many clients say this alone is one of the most validating experiences they've had. From there, we build a plan together that's specific to you, not a generic protocol.
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Understanding your condition — hEDS, HSD, POTS, MCAS, and associated comorbidities
Pacing and energy management
Nutrition and anti-inflammatory approaches
Sleep, stress, and nervous system regulation
Mindset and emotional resilience
Practical self-advocacy — how to communicate your needs to your medical team
Lifestyle adjustments that are realistic, not aspirational
HEALTH ADVOCACY
You shouldn't have to fight this hard to be taken seriously.
Health advocacy is one of the most distinctive things I offer, and there is currently no one else in the UK doing this specifically for the hEDS community. If you've had referrals denied, been told your symptoms are anxiety, or spent years in diagnostic limbo with no clear path forward, advocacy can change that.
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I work directly alongside a consultant rheumatologist and a network of EDS-aware specialists. I write medical summary letters that GPs and consultants actually respond to. I know the system, I know the language, and I know how to make sure your case lands differently this time.
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A detailed written summary of your health history and lived experience
Advocacy letters to GPs, consultants, and specialists
Support navigating referrals and denials
Direct referral to my clinical partner network where appropriate
Workplace advocacy — supporting reasonable adjustments and employer communication
Family advocacy — helping loved ones understand your condition
Choose the level of support that’s right for you
Understand your health
Ideal if you need clarity and a personalised plan.
✔ 90 minute consultation
✔ Personalised care plan
✔ Health & symptom review
Build lasting change
Ideal if you want support implementing your plan.
✔ Everything in Freedom
✔ 2 follow-up sessions
✔ One-off advocacy
✔ Between session support
Ongoing support & advocacy
Ideal if you want ongoing guidance and advocacy.
✔ Everything in Foundations
✔ 4 follow-up sessions
✔ Ongoing advocacy
✔ Ongoing flare-up & symptom management plan
Thinking about working together?
Before you make your decision, I’d love to have a chat.
Book a free discovery call to find out more about how I can support you, talk through what you’re looking for, and see if we feel like the right fit. No pressure, just a friendly conversation to help you decide what feels right for you.
A network that actually talks to each other.
Living with a complex condition like hEDS often means you need more than one kind of support and those practitioners rarely coordinate. I work closely with a trusted network of independent specialists and refer directly when more targeted input is needed. No gatekeeping. No starting from scratch every time.
DR EDWARD SAMES
Consultant Rheumatologist and General Physician
JO COULTER
Specialist Musculoskeletal and Persistent Pain Physiotherapist
ANNA VAN PIGGELEN
Osteopath and Orofacial Myofunctional Therapist
CLAIRE FARAGHER
Osteopath and Medical Acupuncturist
Kind words from previous health coaching clients
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"From the moment I met Joo, she made me feel heard. Her coaching and health advocacy helped me understand my symptoms, organise my thoughts, and confidently advocate for myself, leading to a successful NHS referral. Joo combines genuine compassion with exceptional knowledge, and I wouldn't hesitate to recommend her to anyone navigating EDS or chronic illness."
— Kay
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"The letter she sent to my GP was instrumental in allowing me to better explain how I was feeling and be taken more seriously. I feel less overwhelmed about the future with more skills and information in my toolkit."
— Ana
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"For someone struggling to get answers about hEDS, working with Joo was life-changing. Her expertise in navigating both the NHS and private healthcare helped me secure a confirmed hEDS diagnosis far sooner than I expected, transforming the way I understand and manage my condition."
— Stephen
Useful resources for the hEDS and HSD community.
In this section you will find upcoming live webinars from Doctors to Physios, all on management subjects for people with EDS and HSD